tag:blogger.com,1999:blog-1556371561007953336.post2797208551418380304..comments2024-03-16T16:44:18.220-07:00Comments on Bad Cripple: Disability, Bioethics and Transplantation: Problems Aboundwilliam Peacehttp://www.blogger.com/profile/00223601480542461802noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1556371561007953336.post-43745615421889747722012-01-24T03:55:25.733-08:002012-01-24T03:55:25.733-08:00Bioethics, as a body of knowledge, seems to do no ...Bioethics, as a body of knowledge, seems to do no more than make explicit the underlying values and attitudes of American medicine. Bioethics will critique procedures, but remains in thrall to the arrogance of medicine in general toward the "undeserving" sick-those, generally with severe disabilities, who don't merit, in the eyes of medicine, their precious time and expertise. Even in sitcoms about medicine, the actors are always comfortable making fun of, and demeaning, people with severe disabilities, such as people with dementia.<br /><br />Unless bioethics develops a real critique of medicine as a profession, it will always devalue people with severe disabilities.Norm DeLislehttps://www.blogger.com/profile/17652032694678617032noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-47786611645598301732012-01-23T22:33:55.757-08:002012-01-23T22:33:55.757-08:00Catherine: I think if you went on Huffpost and rea...Catherine: I think if you went on Huffpost and read just a handful of the comments that ensued, you would probably not have a hard time wrapping your brain around the fact that many, many people believe a child who is cognitively disabled doesn't "deserve" an organ. While I have no idea whether this surgeon was "rogue" or not, he was not alone in his judgement. Scary and dispiriting stuff --Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-70872537908454473182012-01-23T17:03:06.433-08:002012-01-23T17:03:06.433-08:00Transplant criteria does not include IQ, from anyt...Transplant criteria does not include IQ, from anything I have read. The doctor was out of line if he did indeed state that the MR designation in Ameilia's file precluded her from transplant at CHOP. I've dealt with CHOP and seen many children get transplants and other expensive procedures when they were mentally disabled. <br /><br />So has CHOP now added this IQ requirement for the tranplant list, is this doctor out of touch and a jerk, did he miscommunicate (from the Riveras' account, he spoke an accented English), did the Riveras misunderstand, did the Riveras spin this without all of the relevant facts?Catherinehttps://www.blogger.com/profile/11149885637140617891noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-64586803123912223342012-01-21T09:54:20.080-08:002012-01-21T09:54:20.080-08:00I feel so tired. And because of that, I'll rei...I feel so tired. And because of that, I'll reiterate Cait the Wild Guitar's comment and say thank you, as well.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-55326500047414738102012-01-21T08:32:24.093-08:002012-01-21T08:32:24.093-08:00Bill-I have always believed that the best defense ...Bill-I have always believed that the best defense against bad ideas is better ideas, & you continually demonstrate those great ideas.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-12047057454476253242012-01-20T15:04:45.971-08:002012-01-20T15:04:45.971-08:00Bioethics (ala Singer and Warren) is a lethal mixt...Bioethics (ala Singer and Warren) is a lethal mixture of science (biology) and ethics (bias/art/assumption). They do not belong in the same house...according to these folk, my son is a "non-person human." This same Singer who makes judgments about the utilitarian value of disabled people asserts "mutually satisfying activities" of a sexual nature may sometimes occur between humans and animals and should be permitted. WTF!Phil Dzialohttps://www.blogger.com/profile/04150881545903849250noreply@blogger.com