tag:blogger.com,1999:blog-1556371561007953336.post6478372834546319013..comments2024-03-16T16:44:18.220-07:00Comments on Bad Cripple: Stand Ins: Jennifer Johannesen and Others Without a Disabilitywilliam Peacehttp://www.blogger.com/profile/00223601480542461802noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1556371561007953336.post-32592650604895491792014-02-21T06:42:01.380-08:002014-02-21T06:42:01.380-08:00Burton, I too bemoan the divisions within the disa...Burton, I too bemoan the divisions within the disability community. All the bias and prejudice we face shares the same roots. I wish others saw this as inherently divisive as you and I do. <br />Jennifer, Your words have resonated with me and many others. Do not demean your efforts. You are not a "poor substitute" in any way. Your passion is palatable and that by itself can make an impact. I can readily imagine an audience wondering why does she care so much. This is critically important because you are correct most people do not care about disability or disability rights. What you do cannot be easily dismissed as the ramblings of a narcissist cripple. Thrilled by the discussion you have prompted. william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-66967147160245128192014-02-20T16:11:12.032-08:002014-02-20T16:11:12.032-08:00Jennifer here - happy to chime in.
I never speak...Jennifer here - happy to chime in. <br /><br />I never speak about disability issues - I speak only about my own story, my personal perspectives, things I've learned and wished I'd done differently. <br /><br />However, I think sometimes the audience THINKS they are getting a lesson in disability issues. As I mention in my own post, my talks are highly consumable and easy to swallow. Lots of cute pictures, a loving family, food for thought. <br /><br />Truth is, we never experienced a single 'classic' disability rights related problem. But people come away from my talk thinking they learned something about disability... <br /><br />I'm a poor substitute indeed, but honestly I don't think the audience really wanted to know about disability anyway. So I provide an easy out. Or, is it an easy 'in'?Jenniferhttps://www.blogger.com/profile/08172527990751499403noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-88274206002043786902014-02-20T11:36:36.138-08:002014-02-20T11:36:36.138-08:00Thank you for this! My friends and colleagues with...Thank you for this! My friends and colleagues with disabilities and I have often railed at the divisions within the "community" of people who have disabilities. Every person seems to work to make his or her own world, based on his or her own disability(s), better. If we all could work together so much could be accomplished. In the meantime I, perhaps as a palatable person with a disability, that is not "too disabled looking" have worked to do presentations that do educate. I am also proud that some non-disabled friends and family members, having seen my experiences, finally get it and have become advocates for disability accessibility, too.Anonymoushttps://www.blogger.com/profile/13698445603454859506noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-83447241527361919532014-02-20T10:48:55.730-08:002014-02-20T10:48:55.730-08:00Scott, Stand ins are in an unenviable position. I ...Scott, Stand ins are in an unenviable position. I am reminded of Victor Turner and Bob Murphy's use of liminality. Stand ins are are straddling two different and divided groups--those with an without a disability. <br />Apulrang, I do not think such a statement would resonate. In fact it could be counter productive. This is a great question to ask Jennifer. william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-41742450308412248882014-02-20T10:44:36.064-08:002014-02-20T10:44:36.064-08:00Well, one thing these "stand-ins" can do...Well, one thing these "stand-ins" can do is conclude their presentations by saying, in effect, "Thanks for asking me to speak on this subject. I hope I did a good job of presenting these issues. But if you really want to understand, you'll have to ask speakers with disabilities to talk to you. I'm a poor substitute."apulranghttps://www.blogger.com/profile/16133974049950425863noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-3947952148667246722014-02-20T10:44:09.176-08:002014-02-20T10:44:09.176-08:00Well, one thing these "stand-ins" can do...Well, one thing these "stand-ins" can do is conclude their presentations by saying, in effect, "Thanks for asking me to speak on this subject. I hope I did a good job of presenting these issues. But if you really want to understand, you'll have to ask speakers with disabilities to talk to you. I'm a poor substitute."apulranghttps://www.blogger.com/profile/16133974049950425863noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-66022393455168663002014-02-19T15:10:19.212-08:002014-02-19T15:10:19.212-08:00Bill,
I enjoyed your piece especially because I ha...Bill,<br />I enjoyed your piece especially because I have a few non-disabled friends who are especially sensitive to how isolated they are sometimes in the in-betweeness of being stand ins. Anonymoushttps://www.blogger.com/profile/12035089687905137788noreply@blogger.com