tag:blogger.com,1999:blog-1556371561007953336.post8605208457679038633..comments2024-03-16T16:44:18.220-07:00Comments on Bad Cripple: The SDS Has a Problem: Will they Respond?william Peacehttp://www.blogger.com/profile/00223601480542461802noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1556371561007953336.post-52191063475642811522013-12-03T08:08:22.898-08:002013-12-03T08:08:22.898-08:00Catherine, The SDS is like every other academic as...Catherine, The SDS is like every other academic association I have been involved. I could level the same critique to dozens of organizations in the social sciences. The SDS has a role, an important one in fact. I would argue they should be held to a higher standard given disability based bis remains rampant. People with a disability need all the support they can get and that should include the SDS. william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-19937592566849332272013-11-26T11:42:25.927-08:002013-11-26T11:42:25.927-08:00It's not just disability conferences. With ou...It's not just disability conferences. With out corporate or institutional sponsorship or having personal wealth, many of these conferences for any group has this gate keeping tactic. Those who can't afford to pay stay out. It's pathetic enough that those conferences with options for parents/people with life threatening, few option conditions require a huge investment in cost to go. Parent groups often pool some money, do some fund raisers and send a few reps to report back since all who want to go cannot afford it and some cannot leave the area if physical condition of self or child/cared for individual does not allow it. It's a luxury to participate in these things. Catherinehttps://www.blogger.com/profile/11149885637140617891noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-74747294749889216412013-11-26T10:43:25.473-08:002013-11-26T10:43:25.473-08:00I really appreciate Rachel speaking up in this way...I really appreciate Rachel speaking up in this way. I felt very similarly. My own advocacy work has been influenced (positively) by just a few words from interestingly enough-Bob Kafka...I remember being a young advocate and growing concerned that my feelings, voice, and approach didn't quite "fit" with the ADAPT approach. While I respected (and appreciated) some of their hard line tactics, it wasn't me. Bob could see this in me apparently and shared, "It takes all kinds. We need people in the boardroom after we finally get that meeting arranged too!" YES-we need to embrace diversity within our culture and be aware of financial difficulties but can't we do so collaboratively instead of making vast assumptions while also disclosing that you don't have much positive to say about this group in the first place.Karahttps://www.blogger.com/profile/15088971759754451387noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-59901128451169118672013-11-26T09:12:28.165-08:002013-11-26T09:12:28.165-08:00Rachel, Wow, you are interpreting my words in a ve...Rachel, Wow, you are interpreting my words in a very different manner than they were intended. I suggested we have a disability rights days nationwide that would involve local and minimal travel for all. Surely accommodations of every sort could easily be arranged. The point here was to as inclusive as humanly possible. I know meetings are hard and while I value face to face human interaction I know others struggle. I also know economics play a huge role. Hence my criticism of the SDS. I do not expect you to take any side. I see no sides in fact. I just envisions a universal desire for the inclusion of all people with a disability. We can only build off our individual strengths. william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-42580380761648084002013-11-26T07:52:55.563-08:002013-11-26T07:52:55.563-08:00Bill, I am troubled by your dismissal of online fo...Bill, I am troubled by your dismissal of online formats and by your suggestion that socializing can only be done face to face. Until the disability world starts figuring out how to make meetings, conferences, and cultural events accessible to people with sensory and social differences, with chronic pain and fatigue, with cognitive disabilities, and with a host of other conditions, online formats will allow a great many more of us to participate. Not everyone can travel to the sorts of meetings you're imagining. Not everyone can tolerate an environment in which people are breaking bread and networking with one another face-to-face, because that environment is not created with their access needs in mind. Until we start dealing with accessibility that goes beyond mobility, CART, and ASL, huge numbers of people are going to be left out.<br /><br />As I read your blog, I am wondering on which side of the line I'm expected to be. Am I supposed to be one of those people who goes to an ADAPT meeting or visits a nursing home? Or am I one of those people whose access is so limited that others will come to me? The former is not possible given the state of access. The latter would not be necessary if access actually existed.<br /><br />This is an example of what I was talking about when I wrote about my sense of apartness in the disability community a few days ago. Somehow, the lack of access for people like me gets glossed over.<br /><br />http://www.disabilityandrepresentation.com/2013/11/24/inattention-to-accessibility/Anonymousnoreply@blogger.com