tag:blogger.com,1999:blog-1556371561007953336.post2206650298988717000..comments2024-03-16T16:44:18.220-07:00Comments on Bad Cripple: Spinal Cord Injury Cure Industry: Part Iwilliam Peacehttp://www.blogger.com/profile/00223601480542461802noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1556371561007953336.post-20662067433752724752010-07-31T07:32:15.061-07:002010-07-31T07:32:15.061-07:00Roy, Someone has to be strident for disability rig...Roy, Someone has to be strident for disability rights. The overwhelming social message that dominates all discourse is the same as it relates to disability--disability is bad, very, very bad. My voice and strident views are an antidote to the dominant sociocultural messages people receive. <br />I am not opposed to health care innovation from other countries. The USA certainly has no monopoly on scientific advancement. I draw the line at questionable procedures such as those performed in China that are risky and provide small gains if any. Add in the cost, over $30,000, and I consider this a form of economic exploitation.<br />Untoward lady, You are 100% correct about Thailand and SRS. A friend of mine is writing a book about Thailand lady boys and I am amazed by the results of surgery. It is really remarkable, far superior to the USA.william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-86428106394405538492010-07-29T21:55:51.607-07:002010-07-29T21:55:51.607-07:00@Roy: I wouldn't say say that all medical tour...@Roy: I wouldn't say say that all medical tourism is a scam or that it's at best dangerous. Speaking as a transgender woman I would like to point out that the best SRS surgeons, bar none, are in Thailand.The Untoward Ladyhttps://www.blogger.com/profile/18035737424208837888noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-60187593438702370092010-07-24T07:55:04.306-07:002010-07-24T07:55:04.306-07:00Interesting thoughts on the cure industry.
I do no...Interesting thoughts on the cure industry.<br />I do not consider NA medical research in the same way that you do, but definitely consider medical tourism to be both a scam and potentially dangerous.<br />While I understand why some people choose to focus their lives on a cure for as their personal emancipation from a life they did not plan for or expect, I'm sure they would benefit more learning to live their life in the same way they did before their injury.<br />I don't mean to suggest that people with an SCI should not devote energy to the pursuit of a cure, just that they shoild not let this devotion rule their lives. There are so many other things worthy of pursuing, like accessibility, mobility, charity and just plain living!<br />Perhaps the response to your BLOG would be different if you were a little less strident? But then again, I guess bloggers are all about getting a response and causing people to be more introspective. You certainly achieve this if nothing else.Royhttps://www.blogger.com/profile/00952969298061327951noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-57493811102047490862010-07-23T12:10:24.897-07:002010-07-23T12:10:24.897-07:00Jeffrey, I have none of the problems that can aris...Jeffrey, I have none of the problems that can arise from a SCI associated with a gun shot wound. I have no pain, spasms that do not bother me and are actually useful. My skin integrity is rock solid--two small sores in 32 years. I am a lucky man or as lucky as one can be after paralysis. <br />I wish there was something I could suggest that would be helpful at a practical level with your pain and spasms. Every SCI is unique unto itself and no two people react the same way. This makes treatment complex and good doctors hard to find.william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-31204486588594926632010-07-23T09:22:06.034-07:002010-07-23T09:22:06.034-07:00I forgot to tell blogger to email me. TcI forgot to tell blogger to email me. Tcjeffreylramseyhttps://www.blogger.com/profile/13586512217601485974noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-21418565670953380142010-07-23T09:19:41.905-07:002010-07-23T09:19:41.905-07:00I Read most of your Blog and had to stop. I'm ...I Read most of your Blog and had to stop. I'm in a lot of pain most days, the spasms are horrible and the wound care is finally getting better. I will finish reading the rest later. I'm a T-9 Para from gunshot wound. The worst spasms I ever seen is mine and a guy from a Baclofen Pump Commercial My story is http://www.jrwasshot.com I would like to know how you cope most days? I use social Media, when able. Tc Jeffrey Ramseyjeffreylramseyhttps://www.blogger.com/profile/13586512217601485974noreply@blogger.com