tag:blogger.com,1999:blog-1556371561007953336.post8689433676150365742..comments2024-03-16T16:44:18.220-07:00Comments on Bad Cripple: Framing the Debate: Assisted Suicide and Disabilitywilliam Peacehttp://www.blogger.com/profile/00223601480542461802noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-1556371561007953336.post-73108514148575046272012-03-09T18:04:58.386-08:002012-03-09T18:04:58.386-08:00You are definitely linked to my blog. i liked read...You are definitely linked to my blog. i liked reading your blog, you have really done a good effort for your blog, I wanted to thank you for this great read. I am very pleased to find this site.<br /><br /><a href="http://www.sanantoniohotelsadvisor.com/" rel="nofollow">san antonio riverwalk hotels</a>Melany Flemmingshttps://www.blogger.com/profile/15065393201884458838noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-29411884876451678602009-02-12T10:19:00.000-08:002009-02-12T10:19:00.000-08:00Alison, I have always been skeptical of informed c...Alison, I have always been skeptical of informed consent especially when it comes to people with a cognitive deficit or mental illness. Today, informed consent is in my estimation more about legal protection than extending information to a person about their health care or consequences of a given medical procedure.william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-70524155220222925212009-02-11T20:58:00.000-08:002009-02-11T20:58:00.000-08:00Oh the stories I can't tell Frida. But I can say i...Oh the stories I can't tell Frida. But I can say informed consent is going out the window Legally in Virginia now for people with severe disabilities and people who are dying. http://hymes.wordpress.comAlison Hymeshttps://www.blogger.com/profile/17263601066114275597noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-736751202879895832009-02-09T09:43:00.000-08:002009-02-09T09:43:00.000-08:00These things help some. In my experience with oth...These things help some. In my experience with other people, phones are still not allowed, nor is internet connection. While theoretically people are too ill to use such in ICU, the reality is that people with disabilities sometimes end up in ICU or CCU because of the greater monitoring needed and for a higher level of disability.<BR/><BR/>In some places friends have been able to take in music to lighten the mood and talk nurses into having a friend or family member (or a couple) present the entire time for comfort measures and advocacy. ;)<BR/><BR/>Lack of informed consent is still a big problem in hospitals, Alison. While it's presumed some decisions will be made while we can't do so, I believe that we should otherwise be informed about what's going on with us and what drugs are going into our system. My daughter was enrolled in a clinical trial after birth without my consent--I don't know wth the ethics people were thinking. I've also been given drugs that while not allergies, are going to have stronger side effects (need zofran instead of fenergan, and morphine will make me hurl).FridaWriteshttps://www.blogger.com/profile/03321658097813377806noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-55290101963621974622009-02-08T07:09:00.000-08:002009-02-08T07:09:00.000-08:00ICUs have improved slightly in recent years. When ...ICUs have improved slightly in recent years. When my father was very very ill I noted that clocks and small TVs were present in every cubicle. I am not sure this is all that helpful. Theoretically the clock and TV gives one a sense of time.william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-90381916129733530122009-02-07T22:47:00.000-08:002009-02-07T22:47:00.000-08:00Yes, forgot to say this was 12 years ago and it st...Yes, forgot to say this was 12 years ago and it still stays with me.Alison Hymeshttps://www.blogger.com/profile/17263601066114275597noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-18464684263758779502009-02-07T14:20:00.000-08:002009-02-07T14:20:00.000-08:00I have not been in an ICU for over a decade yet th...I have not been in an ICU for over a decade yet the thought of being in such an environment still scares me. Sontag always merits reading again and again.william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-22754000494583986452009-02-07T08:39:00.000-08:002009-02-07T08:39:00.000-08:00Having spent a week in an ICU and 4 weeks altogeth...Having spent a week in an ICU and 4 weeks altogether tied to PIC etc. and then another 3 weeks with a PIC etc. I have to completely agree that 1)if there is a hell it is an ICU and 2) any significant time in a medical hospital will disorient you, depress you and in my case, and maybe because I was so dehydrated or maybe because of being in the hospital so long, make you passive in a way you nornally are not. And because of my disability, no one told me I was expected to stay 2 months the first stay and I was lying there afraid of being transferred to a nursing home and thinking I would rather die. (my disability at that time being a psychiatric diagnosis)which led doctors not to talk to me directly nor tell me what was going on despite the fact that I was able to understand once the delirium passed.) Anyway, thank you for this and I need to go read Sontag.Alison Hymeshttps://www.blogger.com/profile/17263601066114275597noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-21876955824118607872009-02-06T05:21:00.000-08:002009-02-06T05:21:00.000-08:00Sontag was one of the best writers I have ever rea...Sontag was one of the best writers I have ever read. She forced readers to think. If there is a hell it will take the form of an ICU. These units help critically ill people survive but any mentally alert person will suffer in such an environment.william Peacehttps://www.blogger.com/profile/00223601480542461802noreply@blogger.comtag:blogger.com,1999:blog-1556371561007953336.post-71234463027920127302009-02-05T15:35:00.000-08:002009-02-05T15:35:00.000-08:00Sontag--oh, she was smart. I need to reread her w...Sontag--oh, she was smart. I need to reread her work. .<BR/><BR/>Continually I try to reflect (project?) to others that life can be good while living with disability.<BR/><BR/>I agree with you that people are probably not going to be assessed for depression or even normal grief. Studies have shown that perfectly healthy volunteers spending a week in ICU become disoriented, depressed, lose their sense of night and day, and have sleep disturbances. It doesn't take long, but some of this can be mitigated. If any other group of people became despondent or suicidal, we'd step in and say, "wait a minute!" I agree that the assumptions people make about illness/disability may preclude their ability or willingness to do so.FridaWriteshttps://www.blogger.com/profile/03321658097813377806noreply@blogger.com