The above leads me to question: what do you do when your customized wheelchair breaks? If you are a power chair user the answer is get ready for a tortuously long wait. A long time here can be weeks, months and in some instances years. Getting parts for any wheelchair is not easy. Finding a person competent to repair a wheelchair is an epic battle. Getting insurance to pay for the most mundane of repairs requires one to navigate byzantine bureaucracy. Every time my wheelchair breaks, a truly rare event, I consider myself lucky. I can repair or replace almost any part on my wheelchair. However, getting parts gets harder by the year. My wheelchair frame is ancient and finding parts that routinely wear out such as bearings, tires, and wheels is now a challenge. While I find newer wheelchairs of interest I always fall back on a simple reality--old technology works.
What do you do when your wheelchair needs a repair? Be prepared to wait. If a person is reliant on Medicare the website states the following:
Frankly, I am angry. Just today I read the following: Most discussions of ableism prioritize its external forms: staircases without ramps, misguided offers of help, applauding disabled people for being “so brave.” Disability itself remains something we “tolerate” or “live with” (but would, of course, “fix” if we could). That kind of ableism – that turns us against ourselves by lying about what success, politeness, health, and independence look like – isn’t broadly acknowledged as internalized oppression yet. Link: http://www.autostraddle.com/telling-myself-the-truth-5-strategies-for-fighting-internalized-ableism-350528/ The ADA is 26 years old and while the law is on my side, the ADA, one could argue it is stealth legislation. People know the ADA exists and there is the general sense the law solved problems we cripples encountered. The ADA has not solved the problem. The problem is that I and my fellow cripples are not a problem. The ADA has created a bureaucracy and there is a sense the letter of the law must be met. The result can be something like the multimillion dollar Syracuse University promenade. Many bipedal people have repeatedly told me how great the promenade is. It has enhanced wheelchair access at Syracuse! The people that state this do not use a wheelchair. The people that I know who use a wheelchair consider the promenade to be a symbolic fuck you. Bipeds do not like this reaction. I can't blame them one bit. There is cultural divide here as broad and as expansive as the Grand Canyon. Somewhere in that expanse my voice and the voices of other cripples get lost. More than ever, the slogan nothing about us without us fits.