I just finished reading an article in the Washington Post, "Another Obstacle Conquered" published on July 8 by Carol D. Leonnig. This story fits into the classic media model of lets all feel good about how we are helping the handicapped. What obstacle was "conquered"? The House Speaker's Rostrum will be wheelchair accessible. Wow, this makes me feel so much better. And, gee whiz, I am so lucky to be an American and have a law, the ADA, protect my civil rights. Too bad that reality as I know it is radically different from the myth portrayed in the Washington Post story.
I hate to spoil the image of freedom and equality for all but that is simply not reality for millions of disabled people. While there is no doubt major strides have been made since the ADA was passed in 1990, the gulf between disabled people and those that walk on two feet is as immense. The divide is less architectural than it is cultural. Thus when I read that the House Speaker's Rostrum was going to be accessible my thoughts were as follows: No person using a wheelchair has ever led a session of the House. One quadriplegic, Jim Langevin, has served in the House. These thoughts in turn led me to ask why was the House Speaker's Rostrum not made accessible in 1990 when the ADA was passed? Maybe I am missing something but I was under the impression the ADA was made all Americans equal, those that walk and those that cannot.
The message being sent by the House is a tad bit late. Given this, I sadly must agree with Nancy Pelosi who is quoted as saying "Our commitment to a barrier free work place sends an invaluable message to all Americans that the House will lead by example". The example the House has sent to America is not a good one. As I see it the message sent is that the House has ignored the ADA for 18 years. Instead of being embarrassed the House Rostrum remained inaccessible for almost two decades Pelosi and others are slapping themselves on the back for doing a great job. The fact is the Capital and many other symbolically significant parts of Washington remain inaccessible. The excuse often cited for the lack of access is that the law provided a great deal of flexibility in deciding which accommodations can "reasonably" be made accessible for people with disabilities. I for one think the fact the House Rostrum was not made accessible long ago is a far cry from "reasonable". If there were a social demand for access the House Rostrum would have been made accessible years ago. The House Rostrum is accordingly important symbolically and most have failed to comprehend the meaning--it is okay to delay wheelchair access as long as humanly possible because this is accomplished out of the goodness of our heart. This logic conveniently ignores the law and the consequence is that socially wheelchair access is perceived as a mater of choice.
If you think my views are too strident or simply wrong, try using a wheelchair for a few days. Try to go about your life without using stairs and rely totally on elevators, lifts and ramps. What you will find is a shock. What the ADA states as law and what is reality are radically different. Try renting a car with hand controls and you will rarely if ever get your car at the prescribed time or day. Try getting on and off an airplane and you will learn delays of over an hour are the norm, that is an hour after every passenger has already left the plane. Try to go shopping and you will find every accessible changing room is locked and no one knows where the key is. Try and go to the bathroom in a restaurant and you will find it is simply not possible as they are all inaccessible. Try to buy a ticket to any major sporting event on line and you will find that you cannot purchase handicap seats because you must call a "special" telephone number. Good luck waiting to have someone answer. Try to get on a bus and have the driver tell you the wheelchair lift is broken--every day. Try to take a long walk and find curb cuts are routinely blocked by parked cars or simply do not exist. Try entering a classroom but discover you cannot because there is no place sit because the chairs are all bolted to the floor. This is what disabled people such as myself encounter every day. This is exactly why the ADA has been a failure in many ways and why advocates for disability rights have helped to pass an ADA Restoration Act. None of the above seems "reasonable", indeed it reminds me of the Jim Crow Era that black people railed against. This leads me to conclude that the only real way to make society value access is to force it down other's throats by means of civil disobedience. A careful study of the disability rights movement reveals this is incredibly successful. Too bad the media never points out these facts.
Paralyzed since I was 18 years old, I have spent much of the last 30 years thinking about the reasons why the social life of crippled people is so different from those who ambulate on two feet. After reading about the so called Ashley Treatment I decided it was time to write a book about my life as a crippled man. My book, Bad Cripple: A Protest from an Invisible Man, will be published by Counter Punch. I hope my book will completed soon.
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Thursday, July 10, 2008
The Washington Post is Oblivious
PhD 1992 in anthropology Columbia University, I am interested in disability rights and bioethics.
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