Paralyzed since I was 18 years old, I have spent much of the last 30 years thinking about the reasons why the social life of crippled people is so different from those who ambulate on two feet. After reading about the so called Ashley Treatment I decided it was time to write a book about my life as a crippled man. My book, Bad Cripple: A Protest from an Invisible Man, will be published by Counter Punch. I hope my book will completed soon.
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Monday, November 14, 2011
Four Walls Creeping In
It has been two weeks since I found the blister on my hip caused in large part to the Halloween storm and no electricity for almost a week. I was at wound care today. The wound is better, not much but better. I am still stuck in bed and will be for a while. This is very hard. I am overwhelmingly sad. I am coming to terms with the fact I will most likely not be healed until Christmas. Even then my skin will not be up to withstand the rigors of skiing. I had dreamed of skiing out West this winter. Looks like that is a pipe dream now. And in my grim mood I wonder if I will ever ski again. I wonder if I will ever resume a normal life. It is hard to make plans knowing one small mistake can leave me bed bound for months. At least I can function. I am not in a nursing home. I do not need my family to stay in my house and care for me. But life seems very restricted. Yes, the four walls of my bedroom are closing in and I am not happy.
PhD 1992 in anthropology Columbia University, I am interested in disability rights and bioethics.
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3 comments:
Oh no! Very sorry to hear this. It sounds incredibly frustrating. :(
Sending wishes for a quicker healing and a much, much extended ski season...
Bill,
I am so sorry to hear about your skin! I know you were looking forward to ski season. I really hope that you're fully healed by before Christmas. I'm sure you'll be able to ski again & that your life will eventually return to normal.
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