Sam Claflin who plays Will Trayner in Me Before
You is by Hollywood standards a handsome man. His counterpart Emilia Clarke who
plays Louisia is strikingly beautiful.
Tear jerkers and romantic comedies require leading characters that are
exceptionally attractive. The various trailers show Will in a
tuxedo and Louisa in a striking red dress and one clip of Louisia sitting on
Will’s lap at a wedding party. When I see these images I laugh at Hollywood
stereotypes that defy reality. As a paralyzed man many a fine looking woman have sat on my lap. However, any woman that sat on my lap with the sort of dress Louisa
was wearing would be angry the second they got off my lap—their dress
would be stained. In real life wheelchair use is messy and grime is simply part
of life. The nitty gritty associated with wheelchair use ain’t pretty. This
fact never entered into the mind of JoJo Moyes, the author of the book the film
Me Before You is based on. The reason Moyes never thought about this is because
she never bothered to conduct any research into what it is like to live life as
a quadriplegic. She left that thought process to her ableist mind.
I have low expectations when it comes to romance
novels. I have even lower expectations when it comes to romance movies. Emotional
fluff does not appeal. Me Before You is such fluff with a twist. Will is a
quadriplegic, handsome and fabulously wealthy. Will is also the stereotypical miserable,
angry bitter man post spinal cord injury. Lou as she is known in the film is
the opposite. Lou is terminally chipper and has a large smile in seemingly
every scene. Lou dresses poorly and was born on the wrong side of the tracks.
Her life and that of her family is an economic struggle. But lordy be it’s a miracle! The radically
different couple fall in love. Lou will save the day. She will single handedly
convince Will that life is worth living. They will fall in love and all will
live happily ever after. Not so
fast. I am writing about a disability
snuff film not your average romance film. This book and film are different.
Will is killed. Will, once a man of action, goes to Dignitas, the Swiss
assisted suicide facility to die. Oh the tragedy. Tears flow forth and female
teenagers hearts are broken. They gush about how brave Will was, oh how so
loving was his sacrifice. Able bodied audiences cried their proverbial hearts
out this summer. I seethed in anger.
Stop. Let’s back up. The characters fall in
love. People who are in love have sex. Here we have a gorgeous couple. There
must be some gratuitous nudity. If not an out right nude scene at least a
memorable bikini or wet shirt with visible nipples should be in the film. This is standard Hollywood fodder. Sorry, but
no. There must be at least one sex scene—chaste or not so chaste. Nope. Not one moan, not one groan, not one
look of wonder on Will’s face when he sees Lou naked for the first
time. Oh there is some banter about
Lou’s magnificent breasts. There are supposedly touching scenes of Lou and Will
falling in love. There are standard humorous scenes as well. The sexual contact between Will and Lou though is G rated. Think timid
in the extreme. The only conclusion one can reach is not only can’t Will walk
but he sure as hell can’t have sex. He says so himself. He is a quadriplegic. He is a head atop a dead
body. His life is a fate worse then death. s.e. Smith has noted:
We’re
supposed to think it’s wild and a bit racy that a nondisabled person would find
a wheelchair user attractive — and of course he’s very conventionally
attractive, which is supposed to make him all the more pitiful, a powerful,
beautiful man brought down by the horrors of disability. The message for
audiences is that disabled people are objects to be viewed from afar and
pitied,
I am among the first
generation of paralyzed people to forcefully reject the stigma that stubbornly
clings to disability. I reject the pity, stigma, and rampant ableist assumptions
made about the quality of my life. This makes me a decidedly unpopular person. Worse
yet, I have acknowledged my sexual identity. In powerfully rejecting worn out
stereotypes I am subjected to intense societal backlash. Last year I wrote an essay, “Head Nurses”
that was censored by Northwestern University. The controversy surrounding my
essay played out in a very public and heated manner. Looking back a year later I have no doubt the
reason my essay was controversial is that as a paralyzed man I refused to set
aside my sexuality. In short, I undermined the myth that people with
disabilities are asexual or unable to satisfy their sexual desires.
I find
Me Before You deeply objectionable because it perpetuates the myth people with
disabilities are asexual. Will and Lou
never consummate their relationship. They don’t even come close. Will is to the best of my knowledge the first
strikingly handsome male lead in a romance film to be completely asexual. This is troubling to me. Human
sexuality forms a core part of our identity. Sexuality
is an important part of the human experience. Moreover, men and women have
reproductive rights and those rights include those with and without a
disability. However, when disability enters into these essential discussions
non-disabled people get uncomfortable.
Disability and sexuality remains taboo and by extension people with a
disability are not considered to be parental material and worthy of
love. These assumptions are of course wrong and Me Before You profoundly
undermines the human rights that the ADA is designed to protect.
Me Before You is far from the
only Hollywood film that badly mangles disability and sexuality. Films that
leap to mind are Whose Life is it Anyway and Million Dollar Baby. Disability representation
always seems to be used as a plot device to grease the skids of a miserable
story. We all know anything and everything disability related is inherently bad. While
people who use wheelchairs are far more likely to be depicted in film and
television in recent years, Hollywood rarely hires disabled actors or actresses
with a disability. The roles of people with a disability in film are awarded to
non disabled people like Sam Claflin. Penny Pepper in the Guardian discussed noted
this obvious bias:
Prevailing discussion on sexuality
among disabled people tends to the broad and the satisfyingly contradictory –
but there’s a strong disconnection between what we discuss and what fascinates
the non-disabled. Even if the sense of taboo starts to lessen, we’re still left
out of debates about sexual freedoms, and have been since the 60s. Instead our
sex lives are discussed in terms of these “issues”: what it’s like to be
non-disabled and have a disabled partner; what a disabled person might face if
they want to have children. It’s even an “issue” if you want to go on a
casual-sex rampage! Overwhelmingly, disabled people experience discrimination
by way of barriers and negative attitudes. This is as true of sexual adventure
as it is of everything else.
I do not have any issues with
regard to my sexual identity or my sex life. I do have issues with the way in
which non disabled others think about my sex life. I have had to confront this
head on my entire life. I have been asked “can you have sex” continuously for
38 years. The question is not really a question but rather affirming that I am
an asexual being. The assumption has never changed—I cannot have sex. Strangers
have asked me this. People from every walk of life have asked me. What no
typical others seem to get is that the question itself, can I can have sex, is
dehumanizing. If I were not paralyzed the question would never be asked. But
paralyzed I am. Misrepresented I am as
are all those with a disability. The battle for disability rights is far from
over. Yes the law is on our side thanks to forty years of progressive
legislation but the stigma closely associated with disability is reinforced by films like Me Like You. To return to Pepper:
we fight, on many levels, for our
experiences to be recognised within the broader body of human experience, to
have our views genuinely represented in all their forms, and expressed by our
own creatives across all art and popular culture – and always with a favourite
mantra from our activist movements: nothing about us, without us.
Please don’t
tell me about the exceptions that exist. The Sessions was a good film but is
far from the norm. Even the Sessions had serious flaws. The main character
had to seek out a sexual surrogate and was a virgin. The not so unintended
message was no woman could possibly be attracted to a man who is severely
disabled. Think about it another way: how many characters on film and TV played
by an actor or actress with a disability are portrayed as sexual beings? This
omission has a real impact on lives lived. This thought prompts me to think way
back to those awkward early years as a paralyzed man. In 1978 I was a newly minted paralyzed guy.
When I launched my adult life at college I was shy and eager to date. I was
also eager to have sex. I quickly learned many women instantly dismissed me as
a potential partner. This was difficult to accept and an ever present reminder
I was in all ways less. I truly had a social disease as Robert Murphy would
often quip. Then for a short period of time my dating life picked up. The anti
Vietnam movie Coming Home with Jon Voight and Jane Fonda was released. One of
the characters was a paralyzed man played by Voight. I loved this movie in part because it was the
only film in which a paralyzed man was portrayed as sexually active. Better
yet, the character was sexually skilled and provided his female partner with
sexual pleasure her able bodied husband did not provide. I was thrilled. Apparently my female college peers had similar thoughts. Women that had once instantly dismissed me were
having second thoughts. That is the sort
of power Hollywood has on popular culture. Don’t be fooled by those involved in
making Me Before You. Movies play a central role in how we perceive others. The
film is ableist propaganda and not about one man and his choice to die as Moyes maintains. It is a film that perpetuates disability based
prejudice. As such it is and will remain a disability snuff film. It is proof positive ableism kills.
2 comments:
yes totally accept. If possible can you share that movie link? or through dropbox?
My blog
https://spinalcordyoga.wordpress.com/
Finally the critique I was looking for. I am not paralyzed in anyway, but I felt cheated and disturbed by the way Will was not fully developed. Any man of his age would have had sex with Lou - and with his Personality - he would have sought it out and directed it. To avoid or eliminate this aspect of his personality was cheap pandering to a pg rating. I wanted to see another John Voight like character so that the romance would make sense given the ages of the characters. As it is - this is a Juvenile treatment of what could have been a great romance.
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