I get much thinking done as I walk around the city of Syracuse. Today, I walked around my neighborhood of Franklin Square. I passed many homeless people. I passed more than a few urbanites walking in business clothes. I know two bottle guys who make money collecting return bottles. These men work very hard and its a dirty job. I think the bottle return laws are great and return or give away my free nickels. The area I lie in is a strange place. Within a mile I can pass homeless people who live in camps that can range from primitive to rather elaborate set ups. I shake my head in wonder how homeless people can survive the winter in Syracuse. This is a gritty city and outdoor living is harsh in the extreme. Regardless of one's stature, social or economic, what I find remarkable is all the comments I generate. These comments come largely when I am alone. In the last ten days I have heard:
"Keep on pushing brother"
"God will heal you. I will pray for you"
"Get on the side walk asshole" (no sidewalk exists)
"Its a lovely day, enjoy"
"You are the anti-Christ"
"You should not be out by yourself"
"How fast can that thing go?"
"Want to race?"
"Why don't you just die already"
Unpredictable. My life is never boring when I go out in public. College campuses offer some refuge in that the overwhelmingly nasty unsolicited comments are largely absent. But in gritty Syracuse I often have no idea what people will say. Part of this is the area I live in. I can pass a $100,000 car parked on the street and see a bottle guy a few yards away collecting returns. Only in America--thank you capitalism. Walking makes me realize in a visceral way that disability is a cause and consequence of poverty. I am as a result far more comfortable around poor people. The disenfranchised are my people. I know this because I grew up surrounded by great wealth. I was always the only person using a wheelchair. Snobs looked down their noses at me, aghast I was present. The unspoken reality is that disability and poverty go hand in hand. The troika of a lack of education, access to mass transit/housing, and unemployment result in fractured lives. Countless lives have been derailed. This is a human rights catastrophe that no one wants to talk about much less solve. I think about this every day. I rail against this every day.
As I pass abandoned buildings, renovated former factories, abandoned houses, newly built hotels, it is easy to get depressed. Disability is hard. It is a vortex that can be utterly catastrophic. Long ago when I became fascinated by anthropology I thought about doing Native American ethnography. The more I read the more depressed I became. I did not want to spend the rest of my life reading about genocide. Disability history is not exactly uplifting reading. If you doubt me just read The Ugly Laws or Nothing About Us Without Us. So on this day I refuse to give in ableism. A word that I once thought would never be popularly used. But I am wrong. For my son and I recently commented about how we see the word more often in the mainstream press. The advance of disability rights is taking place but at a glacial pace. For my fellow cripples, hang in there. Tomorrow will be a better day. Don't give bipedal bastards the satisfaction of giving in. Get outside. Live life to the fullest. Enjoy the below "Still Not Dead".
Thank you for your eloquent writing. I live in northern California and have had MS since 1989. Much of what you say resonates with me. When you move to Denver, do you think you'll get another dog? Do you have an opinion about assistance dogs?
For instance: http://www.cci.org/
Susan, Yes, I have every intention of getting another dog. I am in the process of filling out applications. This is exciting. But the downside is getting a dog takes a very long time--schools suggest the wait is 2 to 3 years.
I'd never heard that song before. You, sir, just made my week.
Tangent Y, That song made my week too!
Ive had the falsely supportive religious remarks, but never the abusive ones although I did have some religion based abusive remarks in one occasion, gosh Im not certain I could tolerate those abusive remarks anymore, it might become violent, just imagining it makes my blood pressure increase, which with my current health is dangerous to me
take care & stay safe
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