This is the eight week I have been unable to get out of bed. It has been six days since I was at wound care. I will be at wound care in eight days. A wound care specialist comes to my house Monday, Wednesday and Friday. I get up at 8 or 9AM. I have tea and fruit or breakfast, I eat lunch at noon, dinner at 6PM. This schedule is set in stone, deviations rare. I live in short an exceedingly dull, routine life. I despise this schedule and my temporary dependence. I feel as though my life is crushing to my spirit. I have trouble concentrating and overcome by a sense of hopelessness. I thus feel very much like a sailor from an era gone by that was stuck in the doldrums. No wind equaled no power. No power equaled no progress. I am likewise powerless though healing.
I suspect I am experiencing what a marathoner goes through half way through a race. I am guessing my wounds are at the half way point to being healed. I know the worst is behind me. My mind knows this but my heart is a different matter. My heart is filled with woe. Gosh, what a fucking baby I am. I am blessed with a great family and while I complain about insurance I did learn my entire hospital stay was covered--minus $160 for the television. Without this coverage I would be broke--hence health insurance in this country has become house and bankruptcy insurance. This knowledge does not make me feel better. I know I am the unusual paralyzed person. I have adequate insurance and enough work. I have a large family that provides economic help when needed, as in helping pay for uncovered medical expenses. These are luxuries few other people enjoy. How then do I have the right to feel the way I do? I simply don't. I tell this to myself again and again. Sometimes it helps and sometimes it does not. Today such a mantra is not working. Nothing is helping aside from posting these words on the internet. What a weird world we occupy. Here I am alone in front of a machine, utterly reliant on technology. Yet, what do I miss? Humanity, ah the dialectics of modern social life.
Paralyzed since I was 18 years old, I have spent much of the last 30 years thinking about the reasons why the social life of crippled people is so different from those who ambulate on two feet. After reading about the so called Ashley Treatment I decided it was time to write a book about my life as a crippled man. My book, Bad Cripple: A Protest from an Invisible Man, will be published by Counter Punch. I hope my book will completed soon.
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Wednesday, October 27, 2010
Stuck in the Doldrums
PhD 1992 in anthropology Columbia University, I am interested in disability rights and bioethics.
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