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Wednesday, April 16, 2008

An Example the New York Times Can Follow

Yesterday I posted an entry on my blog that was critical of the New York Times. This was not the first time I have taken an article in the New York Times to task. I do not anticipate it will be the last time I am critical of this influential national paper that seems to invariably screw up all stories about disability related topics. A friend sent me an email after reading my blog and asked if I had read any recent stories in the mainstream press that did not warrant such a stinging critique like the one I gave the New York Times. It did not take too long to come up with an affirmative response.

Although not of the same stature of the New York Times, I read an article in Diveristyinc entitled "7 Things NEVER to Say to People with Disabilities". Normally I do not like such lists but this article by Daryl Hannah was an exception. The author did her homework, talked to people at the National Organization on Disability and made a concerted effort to not only inform potential employers about possible pitfalls when interviewing a disabled person but provided U.S. Census Bureau data about the number of disabled people in the work force. More personally, I have been asked each of the seven things Ms. Hannah listed that should not be said to people with disabilities. Each and every question is rude, intrusive, and grossly inappropriate to ask any person who is or is not disabled.

It would be easy for me to quibble about some things Ms. Hannah wrote. However, the general points she made were on target, perfectly suited for a large or small company that might be seeking to hire a disabled employee. Given Ms. Hannah's probable audience, people who work in human resources that have little knowledge of disability, her article is constructive and likely to prevent a potential employer from inadvertently asking an insulting question. If Diversityinc can publish an informative article about disability surely the New York Times and other major media outlets can do so as well. Until that happens I will keep on reading the New York Times and skewering them when needed.

Tuesday, April 15, 2008

New York Times and Rich Cripples

The New York Times has a penchant for publishing amazingly demeaning articles about people who are disabled. A friend sent me a link to an article published last Sunday that took demeaning to an entirely new level. The article was published April 13 and should have appeared in Town and Country. In a special Sunday section, Habitats, an article by Celia Barbour appeared about Bronxville, NY. Entitled "A Place to Get Better and Thrive", the article was as thoughtless as it was vacuous--a life styles of the rich and famous about a wealthy man, Francesco Clark who has been a quadriplegic for six years.

By the second paragraph I knew the article would be dreadful. Mr. Clark is an ambassador for the Christopher Reeve foundation a sure sign that he is oblivious to the civil rights of disabled people. In the article readers are informed Mr. Clark was injured in a swimming accident six years ago and is a quadriplegic. Readers are told tidbits about Mr. Clark's life that include the fact he traveled to China for stem cell surgery, lives in an opulent home in Bronxville, and that two years ago he spent $35,000 converting the family garage into a gym. Mr. Clark is characterized as "well-to-do-enough to afford top-notch treatment" and that he learned Spanish to help him communicate with some of his caretakers. He also comes from a long line of doctors and inherited a creative outlook toward healing.

Obviously Mr. Clark is wealthy. I do not begrudge Mr. Clark his wealth but I sure do question his penchant for surrounding himself with others who share his outlook and interest in innovative treatments and clinical trials. These are the same buzz words and "interests" that Mr. Reeve used to distance himself from other disabled people who did not share the economic power these men clearly enjoy.

In sharp contrast to Mr. Clark, I am far more interested in the economic and social reality that most disabled people are forced to confront. Statistics demonstrate that the vast majority of paralyzed people in this country are unemployed, live at or below the poverty level, cannot afford substandard health care, and many quadriplegics such as Mr. Clark have no choice but to live in a nursing home. Few paralyzed people can afford to purchase state of the art exercise equipment and hire local trainers to work with them for hours on end. Mr. Clark exclaims that the result of his hard work has left "medical community dumbfounded by my progress" (similar claims were made by Mr. Reeve). Perhaps doctors would not be surprised by Mr. Clark's condition if they knew more about the grim social and economic conditions most paralyzed people deal with. I know not a single individual that can afford to live the life Mr. Clark leads.

It is obvious to me that Mr. Clark is using his wealth to insulate himself from other disabled people. In many ways I cannot blame him for who wants to deal with stigma, economic deprivation, and social isolation. Money can buy many things but it cannot purchase equality even for Mr. Clark. Ms. Barbour's article contains many unfortunate phrases such as "confined to a wheelchair" that demean not just Mr. Clark but all paralyzed people. Ms. Barbour is also blissfully unaware of the difference between a medical and social model of disability. She writes that doctors expected Mr. Clark to "accept his fate, curb his expectations, and get used to living on the margins". No such message is sent by the medical community. Based on my experiences as a paralyzed man for the last 30 years doctors are unaware of such social obstacles. The idea that disabled people have limited lives is a social norm enforced by ordinary citizens--your neighbors and mine. Disabled people are marginalized by a social system that denies them their humanity by placing needless obstacles in their way. Sure no one wakes up and thinks I am against the disabled--the social oppression is sanitized and rationalized in a myriad of ways that makes it palatable. Thus people are not bigots but rather fiscally responsible when they refuse to include expenses that provide equal transportation for disabled students in a given school system.

What I hope to see in the New York Times someday is an article about the social and economic variables that prevent equality for all that have some sort of physical deficit. I want to read an article about average people that do not live in Bronxville but rather in a nursing home because they cannot afford a personal attendant at home to assist them with routine aspects of daily life. This is a gripping story and a human rights violation that the New York Times chooses to overlook and conspicuously ignores. I guess fluff pieces like the one penned by Ms. Barbour sell papers.